BANDofPARENTS bound by hope
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| On September 20th, Band of Parents President Gavin Lindberg met with Congresswoman Deborah Pryce (R-OH) in Washington, D.C. Congress woman Pryce is the leading advocate on Capitol Hill for neuroblastoma families and works tirelessly as co-chair of the House Cancer Caucus to promote increased federal funding for cancer research and prevention programs. Unfortunately, Rep. Pryce knows first-hand the challenges faced by neuroblastoma patients having lost her daughter Caroline to this terrible disease at age 9. At their meeting, Gavin introduced Band of Parents to Rep. Pryce and expressed the group's appreciation for her leadership in introducing the "Conquer Childhood Cancer Act" and the "Access to Cancer Clinical Trials Act." The Conquer Childhood Cancer Act would authorize $150 mill ion over 5 years for pediatric cancer research and awareness programs at the National Institutes of Health. The legislation is making good progress in the House having secured 160 bipartisan co-sponsors. It's companion bill in the Senate (introduced by Sen. Jack Reed (D-RI) was unanimously approved by the Senate Health, Education, Labor and Pensions Committee on November 14th and awaits consideration of the Senate floor. Congresswoman Pryce expressed her strong support for the mission of Band of Parents and congratulated the families for standing together in the face of adversity. To learn more about Rep. Pryce and her legislation please visit -- www.house.gov/pryce. To learn more about the non-profit organization she and Caroline's father established in memory of their daughter please visit http://hopestreetkids.org. |
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The Fabulous Hubcaps Benefit Concert
www.thehubcaps.com
One of America's greatest oldies showbands is coming
to Northern Virginia for one big show this spring! Come see the likes
of Buddy Holly, Fats Domino, Ray Charles, Little Richard, the Beach
Boys, Elton John, Rod Stewart, the Rolling Stones, and a few other
surprise acts.
Date: Friday April 25th Doors open at 6:30
Location: Centreville High School, 6001Union Mill Rd., Clifton Va. Just
30 minutes west of Washington, DC. Plenty of hotels near by for out of
town supporters!
Cost: $35 per person / children under 6 are free!
Show is from 7-10 pm. Pizza and refreshments will be available.
Sponsored by Band of Parents, a 501(c)3 non-profit charity for
childhood cancer. Come enjoy the period costumes, the jitterbug
dancing, the laughs, and the music! There are only 1,700 tickets
available.
www.thehubcaps.com
One of America's greatest oldies showbands is coming
to Northern Virginia for one big show this spring! Come see the likes
of Buddy Holly, Fats Domino, Ray Charles, Little Richard, the Beach
Boys, Elton John, Rod Stewart, the Rolling Stones, and a few other
surprise acts.
Date: Friday April 25th Doors open at 6:30
Location: Centreville High School, 6001Union Mill Rd., Clifton Va. Just
30 minutes west of Washington, DC. Plenty of hotels near by for out of
town supporters!
Cost: $35 per person / children under 6 are free!
Show is from 7-10 pm. Pizza and refreshments will be available.
Sponsored by Band of Parents, a 501(c)3 non-profit charity for
childhood cancer. Come enjoy the period costumes, the jitterbug
dancing, the laughs, and the music! There are only 1,700 tickets
available.
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Sign up for BOP's
Newsletter!
We are in the process of creating
an email based newsletter to
share information with our Band of
Parent members and *Friends of
the Band. The newsletter will
share important information about
funded research projects,
upcoming events, family profiles,
foundation initiatives, goals, and
other points of interest. We plan
to send between 4 and 6
newsletters per year so as not to
inundate our supporters. Our goal
is to provide relevant and timely
information. *A Friend of the Band
is anyone interested in our cause
who wants to help us parents
develop new treatments for our
children by spreading the word,
fund-raising, supporting our
events, volunteering time and
services, or simply keeping our
children in their thoughts and
prayers. We welcome the
opportunity to share our progress,
news, goals, and challenges with
those who are helping to support
our efforts. Together the Band of
Parents and our Friends can truly
make a difference. SIGN UP HERE
Newsletter!
We are in the process of creating
an email based newsletter to
share information with our Band of
Parent members and *Friends of
the Band. The newsletter will
share important information about
funded research projects,
upcoming events, family profiles,
foundation initiatives, goals, and
other points of interest. We plan
to send between 4 and 6
newsletters per year so as not to
inundate our supporters. Our goal
is to provide relevant and timely
information. *A Friend of the Band
is anyone interested in our cause
who wants to help us parents
develop new treatments for our
children by spreading the word,
fund-raising, supporting our
events, volunteering time and
services, or simply keeping our
children in their thoughts and
prayers. We welcome the
opportunity to share our progress,
news, goals, and challenges with
those who are helping to support
our efforts. Together the Band of
Parents and our Friends can truly
make a difference. SIGN UP HERE
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Tickets are $35.00,
children under 6 are free.
This is a family event for all
ages. Business and
Corporate Sponsors who
would like to support Band
Of Parents through
sponsorship of this event
should contact Caryn
Franca via email at
carynfranca@aol.com
children under 6 are free.
This is a family event for all
ages. Business and
Corporate Sponsors who
would like to support Band
Of Parents through
sponsorship of this event
should contact Caryn
Franca via email at
carynfranca@aol.com
Be sure to pick up a
"ROCK'N FOR A CURE"
(graphic right)
Commemorative T-Shirt at the
concert. Art work by Stephen
Pannone, a band of parents
member, graphic designer,
and father of Toby Pannone. All
proceeds will support
neuroblastoma research.
"ROCK'N FOR A CURE"
(graphic right)
Commemorative T-Shirt at the
concert. Art work by Stephen
Pannone, a band of parents
member, graphic designer,
and father of Toby Pannone. All
proceeds will support
neuroblastoma research.