BANDofPARENTS bound by hope
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We are in the process of creating an email based newsletter to share information with our Band of
Parent members and *Friends of the Band. The newsletter will share important information about
funded research projects, upcoming events, family profiles, foundation initiatives, goals, and other
points of interest. We plan to send between 4 and 6 newsletters per year so as not to inundate our
supporters. Our goal is to provide those who are interested with relevant and timely information.
Parent members and *Friends of the Band. The newsletter will share important information about
funded research projects, upcoming events, family profiles, foundation initiatives, goals, and other
points of interest. We plan to send between 4 and 6 newsletters per year so as not to inundate our
supporters. Our goal is to provide those who are interested with relevant and timely information.
Simply complete the form to the right and you
will be automatically added to our email list.
will be automatically added to our email list.
Look for the first BOP newsletter to arrive in
your mailbox by mid June
your mailbox by mid June
* Friends of the Band ?
A Friend of the Band is anyone interested in
our cause who wants to help us parents
develop new treatments for our children by
spreading the word, fund-raising, supporting
our events, volunteering time and services, or
simply keeping our children in their thoughts
and prayers. We welcome the opportunity to
share our progress, news, goals, and
challenges with those who are helping to
support our efforts. Together the Band of
Parents and our Friends can truly make a
difference.
A Friend of the Band is anyone interested in
our cause who wants to help us parents
develop new treatments for our children by
spreading the word, fund-raising, supporting
our events, volunteering time and services, or
simply keeping our children in their thoughts
and prayers. We welcome the opportunity to
share our progress, news, goals, and
challenges with those who are helping to
support our efforts. Together the Band of
Parents and our Friends can truly make a
difference.
