Band of Parents is a grassroots, nonprofit organization that funds innovative research and clinical trials for neuroblastoma, helping increase the survival rate for this childhood cancer. We are a support network for the newly diagnosed and their families as they go through treatment. Our goal as parents is to fast track a cure using less toxic, targeted therapies.
Our son, James Goebel, is walking proof of the power of Band of Parents-funded clinical trials and research. In December 2020, when James was diagnosed with stage 4 high-risk neuroblastoma, it was a “head-to-toe” diagnosis. In addition to his primary tumor, he had over 20 lesions of disease all over his small, four-year-old body. Our energetic, spirited child was suddenly overtaken by this rare, aggressive disease. We proceeded with standard frontline treatment starting with many rounds of high-dose chemotherapy and soon learned the devastating news that James had chemo-resistant disease. Despite...
